As you know Mr. Poopy has left but was shortly replaced by a 13 year old girl. I never saw what she looked like but she didn't make even the smallest peep. It was amazing how quiet that night was. Of course it didn't last. Oh no, turns out the girl went home the next morning and a new kid moved in. He too is in bars. It's like Planet of the Apes over here when the humans were put in cages! But on another note, let me tell you WHY they moved him to isolation. Turns out that he was sharing a room with someone but because he was so loud they had to move him to isolation. So now only the person next to him (aka me) can hear his obnoxious sounds. He make these moaning sounds everyday that are so LOUD. Every night I have to pray he's not awake when I go to bed or I'll never sleep. I can't even spell out the noises that come out of this kids mouth it's the weirdest thing. It's like a "Mooooo" without the M mixed with a "Bahhhhh". I guess I have a farm next door now. There is always someone going in and out of his room all day. He sounds like he has to be heavily watched. They caught him chewing through an electric cord one day and trying to yank out his feeding tube! I'm freaking out a little bit. On top of that I have a baby on the other side that sounds like a squeaky dog toy when it cries. It's a constant reminder I'm in a kids hospital and feel so out of place. The staff is what makes it worth while though. They are amazing and great to talk to. I think I've just been grumpy from not sleeping. I miss Mr. Poopy more than ever and I'm still counting down the days till my next PFT which will be Monday.
This morning I woke up with a rash starting on my arm though. Oh boy I'm so used to this crap now that it hasn't even fazed me yet. I'm pretty over this entire thing, I don't have the energy anymore to get upset over every little thing. This is the same rash that happened the last time I had a picc line put in 6 months ago. That rash had blistered and spread from my wrist to my shoulder and took a month to heal. It was caused by the bandage. I'm allergic to the adhesive or something. This time we knew what to look for and catch it quick if it were to happen again. Sure enough it did but we were prepared. I put a cream on it today and it started looking better. The bad part is I can only put it on twice a day. I really hope it doesn't get worse I don't know what we'll do. I'll probably need the bandage replaced soon because it's peeling away. The issue with that is my rash will get worse the more it's messed with so I'm trying not to think about it.
Mom bought Burlesque so we watched it last night. It was amazing! The clothes, make-up, dancing, was just what I needed to see. Now I want to get home and get a makeover done. "Oh there's no place like home!" I just want to squish my ducky slippers together and wake up like Dorothy. Does anyone have Glinda's number by any chance???
Tonight mom drove around and found a Mcdonalds for me today. It was such a nice change I don't know what I would have eaten if she didn't. She got me a coffee too and let me know that there is a Dunkin Donuts 5 minutes away. My dream came true. Maybe it'll help me get my butt up in the morning Ha!
It sounds like you are getting Cabin Fever Jade. I'm sure that your test results will help you on your way home! You have a great sense of humor with your blog and I enjoy reading it. Have a great day today! Mindy
ReplyDeleteGood morning, Jade. You will laugh heartily at all this in just another week or so! I remember when my dad was at the nursing home and he saw another patient poop right in the middle of the hallway. He said "It would be funny if it weren't so pathetic."
ReplyDeleteI wonder, like you, what the children next to you are suffering from. Could be that they are in pain and not articulate or have normal speech abilities?
Have you heard of "bioears," wax balls that you form into your ears to suppress noise? They do work. Sold at Walgreens.
It surprises me that there are not alternatives to tape. I read about new products all the time in Science News. I know there are bandaids that are latex free -if it's the latex but it could be the glue.
Keep up your spirits. Love, Aunt Janice
Hi Jade
ReplyDeleteJust hang in there. It won't be long now till you get to come home. The movie I got that I thought I would pass along, isn't that great. Any other requests for a movie?
Ear plugs sound like the perfect solution.
Take care---
Love,
Grandma Barb
You posts have been making us think of an old Jimmy Stewart movie called "Rear Window". I think it won an Academy Award. A man was confined to a wheelchair and spent his days watching the windows of an apartment building across from his own.
ReplyDeletePerhaps you could write a movie script about your experiences and call it "Little Window in my Hospital Room Door"! :-)
I hope your rash is improving. Something like that can become even more important, in an immediate sort of way, than your larger concerns, can't it? I was allergic to something in one kind of injection when I had surgery. No fun!
We hope and pray for good PFT results today.
Love you,
Aunt Lynda
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