Well yesterday I got my results back for my PFT's and wasn't real surprised. They went up 10% which is good but a slow start. They warned me it would be a slow start the first week and the next one would hopefully be better. I was happy but of course I wanted more. I still feel great and everyone who comes in tells me I'm the healthiest CF patient they've ever seen so it's frustrating knowing that I still have to be here. I just keep looking at the outcome. I have some very good news but also kind of sad (for me). Mr. Poopy next door who I mentioned in my last post moved out today. I noticed nurses bringing in boxes to his room and an unfamiliar voice inside. It was his mom. It suddenly dawned on me that he was leaving. He had been in the hospital for 37 days and was in the ICU for a while. I never knew why he was here in the first place but he was supposed to go home last week and didn't. You'd never guess he had anything wrong with him he was a wild little man. I will very much miss my little neighbor he made me laugh. Even hearing his loud noises was somehow comforting. When he left he was dressed in a baseball cap and little backpack. He waved to me and said, "Hi!!!" before he was out of sight. I hope he returns to a safe home. I am happy he's out of here yet sad I don't get to see him anymore. I wish I could see where he is in ten years. I wanted to draw a picture for him but they wouldn't allow it. :-( Right now I'm enjoying moms home cooked spaghetti and fresh pineapple loving every bite. THIS is what food should taste like! I'm so tired of hospital meals. I miss coffee too. Sometimes I daydream about a Caramel Swirl Iced Latte with Whipped Cream from Dunkin Donuts. YUMMY! I received more gifts and cards today (I'll post pictures) I feel so loved thank you everyone. Thanks to everyone sending emails as well it really means a lot.
- Jade
It's good to hear that you are eating mom's food instead of that hospital food. Maybe someone will sneak a Caramel Swirl Iced Latte with Whipped Cream in for you......Have a great evening and I look forward to your next post.
ReplyDeleteYou have inspired Rod and I to start a blog. It's about food and the restaurants we go to. I'll get the link to you.
We appreciate the health update so, so much! What did we used to do before we had this technology stuff? I admire your patience. It has to be frustrating to wait for feedback when you have so much invested in it.
ReplyDeleteMr. Poopy must have been another reminder that you are not going through this alone, though. Many do...young ones and old ones too. We see it happening in our senior community as well. Those of us with support systems are so lucky!
I hope and pray for even better test results this week. Think happy thoughts.
Love,
Aunt Lynda
www.jumpup2chapterbooks.blogspot.com
I can empathize (sp?) how you feel about Mr. Poopy. When I was teaching, there were those kids you always wondered about their home life. You just hope for the best. We are so blessed that we have friends and family that love us and take care of us when we need it.
ReplyDeleteI'm so glad that you are showing progress. It's good to know ahead of time that the second week will be better.
I'm watching a movie tonight that you might like.
I'll let you know what I think.
I'll keep you in my thoughts.
Love,
Grandma Barb
Dearest Jade, I have read through all of your blog this morning. This is my first time on a "blog"! You have a gift for expressing yourself and I hope you continue to write, even keeping a personal journal.
ReplyDeleteI can feel your claustophobia in those rooms. With your talent for art it may help to visualize where you would like to be and draw yourself in that place. Escape through art!
I would have written sooner but have been in Costa Rica with my sister Pat. As you know I was expecting you and your family for a visit this month and I am now planning to see you all this summer. I have lots of nice things planned including going to some neat boutiques with vintage and fun clothes and accessories.
I wish I could be in Mesa now to hug you and make you a yummy latte. I am "testing" a recipe for lemon chiffon pancakes using rice flour to make when you visit here. Everyone I have made these pancakes for says they are the best pancakes they ever had!
Keep writing and drawing and keep keeping on!
Love, kisses, and hugs.
Aunt Janice