For those of you who don't know, I will be staying in the hospital for 2 weeks for my Cystic Fibrosis. My PFT's are low (aka my lungs aren't functioning as well as they could and need a boost). So I'll be writing about my stay whenever I can while I'm here since this is my first visit.
Day one was the hardest. Even with my family there with me I still felt so alone. As I stood in the waiting room in line to sign in all I could think about was the woman behind me coughing on my head that I wanted to slap, and the screaming children running around the room like monkeys. Their parents, ignoring them like cowards and allowing such behavior was disgusting. I wanted to block it out but I couldn't. I have always hated waiting rooms mainly because of the yelling and the sick kids I'm forced to sit with. As soon at they called my name to go back into a room I was immediately relieved. I was in good hands now and in a QUIET place. The nurses were awesome and made me feel comfortable while I waited. The anesthesiologist came in and we talked for a bit. I really liked him he was great. He talked about his daughter and how she loves fashion at such a young age. We talked with the nurses about my tape allergy and a few other things. I realized how important and helpful it is just to speak up and tell them everything. They're just people too and the more they know about you the better. After waiting a while it was time to have my procedure done. I was having a Picc-line put into my arm so I could be given IV antibiotics easily. He gave me the gas mask and I could feel the tingle. I'm always nervous they won't know when I'm totally under so I wiggle my fingers to let them know (unnecessary I know). After I went to sleep and woke up, "Oh god I'm so glad it's over" was the first thing I thought about. My arm was sore but there was a tube in it so it was normal. I waited hours before they could get me to a room because the hospital was so full but I didn't care I just wanted to sleep anyway. When I got to my room I'd be staying in I was a little sad that my window wasn't bigger. I've always loved big bright windows but I was grateful I had the room all to myself. They put me in isolation so I wouldn't get sick from the other kids but that meant I couldn't leave me room ever or go outside. Right away they started my meds. Every 8 hours I have an hour an a half of IV's and every 4 hours I have airway clearance that takes 30 minutes. In the morning and night I have 2 inhalers. I was so overwhelmed by it all that I started to panic. This was the first day, how could I do this for 14 days? I couldn't wait just to go to bed already. I needed a fresh start.
I'm sorry that things are so lonely girl. This is gonna make you so strong though! Then you can spend lots of time outside!!! :D Love you!
ReplyDeleteThis is wonderful! I love your colors. I have realized, though, that my blog is blah. I need some color too.
ReplyDeleteI had no idea that you write so well. Your comments indicate that it feels very personal, but that makes it rich and wonderful.
You go, girl!
Aunt Lynda
www.jumpup2chapterbooks.blogspot.com
Hi Jade,
ReplyDeleteYou have a wonder way with words. I'm glad that you're able to do this blog. It was great talking to you yesterday. I kind of forget how grown up you are. I found the DVD we talked about and left it at the house today. Hopefully you'll get it tomorrow.
Love--Grandma Barb
Jade,
ReplyDeleteYou are a very good writer. I can feel the emotion of your experience in your writing. You should keep up the writing on this and other experiences. I know the challenges you have had to deal with over the years, perhaps the writing about those experiences could get published someday. You could have some good come out of all of these trials in your life. You are a very strong person. I am proud to know you! Sarah Sebring
Hi Jade,
ReplyDeleteThe blog is a great idea. I am going to read everything to the twins tonight. They ask about you everyday.. especially Allie. She adores you! We sent you a package a couple days ago. Your dad said he'd take it to you. I hope it brightens your day and remember that we all love you!!
Hang in there pretty girl :-)
Love,
Aunt Nancy
Jade,
ReplyDeleteI hope everything is going better now! We love you! :)
Amanda