This post is about the little boy in the room next to me that has been quite entertaining. I can't leave my room but I can see him through the window on my door when he's in his cage...uhh I mean crib (we'll get to that in a minute). He's really funny and cute. He's a little african american baby that looks about 3 years old with an afro. I was pretty shocked the first time I looked in and saw him because he wasn't in a normal crib. Oh no, he was in what looks like a full on animal cage with bars that go up into the ceiling. I was so confused with what I was looking at as I thought, "Why on earth is that kid in a CAGE???" It didn't look normal, humans shouldn't be in metal cages. That's when I found out why he didn't have a normal crib. His parents don't stay in the room with him. In fact they never do. They actually dropped him off at the hospital and left. Apparently this happens often. I couldn't believe what I had heard. I could never imagine leaving my 3 year old in a hospital for days or weeks without even visiting! He's all by himself the majority of the day sitting in his cage and watching TV. It's so sad he has to rely on nurses and volunteers to play with him. They come in whenever they can but it's hard because they're busy in other rooms.
I would like to leave a message for the parents who leave their little kids here alone. You are disgusting, sick people that should be in jail for neglecting your kid! Hospitals are not daycare and your child shouldn't go through this alone!
He's so adorable too but sounds like a bit of a trouble maker (because he's bored and alone). He likes to stand up in his cage and shake the bars. Whenever someone walks by his door he just smiles and waves. He's so happy and likes to blab noises. We hear his remote control car ramming into the wall once in a while too. Last night was so funny I had a laugh that brought me to tears. I needed that. We heard a nurse go into his room and suddenly shout, "OH NOOOO YOU POOPED EVERYWHERE!!!". which was followed by a, "HEY POOPY, DON'T PUT THAT IN YOUR MOUTH!" at this point I'm almost on the floor in hysterics as I hear her leave and say, "No more poopy in your pants ok?". I watched as the cleaning ladies went in and out cleaning his poop and ready to gag on the smell. Today was a bit different though. I was watching him through my window I saw him pulling the sheets off his bed and throwing his remote against the crib. Then I got scared because the batteries popped out and he was shoving them in his mouth. I had grandma get the nurse fast and tell them what he was doing. He's been more sad today and has started calling the nurses mom. I want to go play with him so bad and I can't but I hope he doesn't have stay here much longer. So that was my little story about Mr. Poopy next door who brightened my day. Tomorrow I might post more pictures of artwork and a couple gifts I received from friends and I'll be sure to write about my PFT's. They test my lungs again tomorrow so cross your fingers.
Sunday, February 27, 2011
Saturday, February 26, 2011
2/26/11 A rough night
I had a rough night yesterday. I was finally comfortable in my room and all settled in when I got an unexpected visit. A woman came in and informed me that I had to switch rooms. I didn't know what to say. She said you'll be in room 406B which is in the isolation area and that I should start packing up to move asap. When I asked why she said that I was taking up a room that could have 2 beds in it and they need room for other patients. I started to panic because i knew that meant I'd be in a smaller room. Plus it was night time which I never like anyways. It wasn't until I actually entered my new room that I really broke down. I felt so claustrophobic, it was like Alice in wonderland when she grows and gets stuck inside the house. I couldn't stop crying I felt so trapped and confined and I think that was because I couldn't leave the room ever. I couldn't breathe but mom helped remind me that it could be worse and that when the sun come up in the morning I'd feel better. She was right, this morning I woke up and felt somewhat better. I know over time I'll get used to the change It was just a big shock. I am grateful for what I have, yes it's a small room but it has a large window, large bathroom and I don't have to share a room so I'm trying to shut-up. Tomorrow I will write about the little boy next door to me. Tonight I had my first laugh since I've been here and it was because of something he did. I still laugh just thinking about it. Right now I need to sleep though so goodnight to everyone and when the sun comes out tomorrow, smile.
Artwork
This post is going to be strictly about the artwork that's been going on here. A few days ago a woman brought in huge sheets of paper for the walls so mom and I came up with an idea. We had every doctor, nurse, pct and anyone who came in draw a picture on the paper no matter how badly they were at drawing. So far only two people have been excited to draw a picture but I forced the others to as well. When I leave I'm going to make a scrapbook of their artwork and the cards I've received.
 |
| Joe my RT, and Rita my PCT |
 |
| Dr. Rayhorn, and Lori my RT |
 |
| Dads painting |
 |
| My Anesthesiologist |
 |
| Mark my RT, and Terrah my PCT |
 |
| Moms drawing |
 |
| My drawing |
 |
| Sarah from child life, and Dr. J the therapist. |
 |
| Grandma's drawing |
 |
| Cards from my little cousins I love so much. |
 |
| I drew these two on the whiteboard in the room. |
Friday, February 25, 2011
2/25/11 Day 5
If you missed my previous post and it's no longer on my main page just look under the "Older Posts" to the right of the page.
Well, it's been a long 5 days now but each day means the sooner I can get out of here. I'm getting used to the routine now but one of the hardest things is being woken up all through the night and getting up at 8AM every morning for my hard core therapy's. I've gotten pretty sick of the cafeteria food too. It's a big selection but it ain't moms good cooking that's for sure. We are already planning what we're going to eat when we get out of here. This morning was the first time I had a hard time getting down my breakfast. I felt really nauseous. I've never been a morning eater anyways but since I have to take so many pills it's better having something in my stomach. I did however have a Slurpee the other day which I haven't had in years. I forgot how fun they were. I used to always get them at Target or gas stations until the day I saw a small boy actually LICK the spout the slurpee comes out of. I was mortified by what i had just seen. If only I could tell the next person that used it that their slurpee had more then just Blue-Raspberry flavoring inside. Ever since then I only got them at the movies behind the counter where nobody could touch (or lick) it. TIP: Beware of exposed Icee machines. I don't feel like myself yet however because I haven't had a chance to put on my makeup and jewelry. I never go more then 1 day without them but with all the sleeping I've done I feel it's pointless to put it on and take it off so often. Maybe next week I'll catch up on sleep and be able to beautify. I won't even get into the story of washing my hair. It was interesting since I wasn't able to get my arm/Picc-line wet. I never thought I'd be the person that got claustrophobic in a room but it's hit me hard. I'm going stir crazy and have to keep my mind busy in order to not break down. You don't realize how hard it is to stay in one place for 2 weeks until you actually do. I miss taking my daily walks and feeling the sun. Then yesterday I received three get well gifts that I loved so much. It made me smile and feel so loved. It gave me warm fuzzies as I'd say. Tonight or tomorrow I will have another post up that involves lots of pictures. I don't want to give to much away of what it's about but it has to do with some artwork. Thanks to everyone who has started reading this blog and wanting to learn about this piece of my life.
Well, it's been a long 5 days now but each day means the sooner I can get out of here. I'm getting used to the routine now but one of the hardest things is being woken up all through the night and getting up at 8AM every morning for my hard core therapy's. I've gotten pretty sick of the cafeteria food too. It's a big selection but it ain't moms good cooking that's for sure. We are already planning what we're going to eat when we get out of here. This morning was the first time I had a hard time getting down my breakfast. I felt really nauseous. I've never been a morning eater anyways but since I have to take so many pills it's better having something in my stomach. I did however have a Slurpee the other day which I haven't had in years. I forgot how fun they were. I used to always get them at Target or gas stations until the day I saw a small boy actually LICK the spout the slurpee comes out of. I was mortified by what i had just seen. If only I could tell the next person that used it that their slurpee had more then just Blue-Raspberry flavoring inside. Ever since then I only got them at the movies behind the counter where nobody could touch (or lick) it. TIP: Beware of exposed Icee machines. I don't feel like myself yet however because I haven't had a chance to put on my makeup and jewelry. I never go more then 1 day without them but with all the sleeping I've done I feel it's pointless to put it on and take it off so often. Maybe next week I'll catch up on sleep and be able to beautify. I won't even get into the story of washing my hair. It was interesting since I wasn't able to get my arm/Picc-line wet. I never thought I'd be the person that got claustrophobic in a room but it's hit me hard. I'm going stir crazy and have to keep my mind busy in order to not break down. You don't realize how hard it is to stay in one place for 2 weeks until you actually do. I miss taking my daily walks and feeling the sun. Then yesterday I received three get well gifts that I loved so much. It made me smile and feel so loved. It gave me warm fuzzies as I'd say. Tonight or tomorrow I will have another post up that involves lots of pictures. I don't want to give to much away of what it's about but it has to do with some artwork. Thanks to everyone who has started reading this blog and wanting to learn about this piece of my life.
Thursday, February 24, 2011
2/21/11 Day one in the Hospital
For those of you who don't know, I will be staying in the hospital for 2 weeks for my Cystic Fibrosis. My PFT's are low (aka my lungs aren't functioning as well as they could and need a boost). So I'll be writing about my stay whenever I can while I'm here since this is my first visit.
Day one was the hardest. Even with my family there with me I still felt so alone. As I stood in the waiting room in line to sign in all I could think about was the woman behind me coughing on my head that I wanted to slap, and the screaming children running around the room like monkeys. Their parents, ignoring them like cowards and allowing such behavior was disgusting. I wanted to block it out but I couldn't. I have always hated waiting rooms mainly because of the yelling and the sick kids I'm forced to sit with. As soon at they called my name to go back into a room I was immediately relieved. I was in good hands now and in a QUIET place. The nurses were awesome and made me feel comfortable while I waited. The anesthesiologist came in and we talked for a bit. I really liked him he was great. He talked about his daughter and how she loves fashion at such a young age. We talked with the nurses about my tape allergy and a few other things. I realized how important and helpful it is just to speak up and tell them everything. They're just people too and the more they know about you the better. After waiting a while it was time to have my procedure done. I was having a Picc-line put into my arm so I could be given IV antibiotics easily. He gave me the gas mask and I could feel the tingle. I'm always nervous they won't know when I'm totally under so I wiggle my fingers to let them know (unnecessary I know). After I went to sleep and woke up, "Oh god I'm so glad it's over" was the first thing I thought about. My arm was sore but there was a tube in it so it was normal. I waited hours before they could get me to a room because the hospital was so full but I didn't care I just wanted to sleep anyway. When I got to my room I'd be staying in I was a little sad that my window wasn't bigger. I've always loved big bright windows but I was grateful I had the room all to myself. They put me in isolation so I wouldn't get sick from the other kids but that meant I couldn't leave me room ever or go outside. Right away they started my meds. Every 8 hours I have an hour an a half of IV's and every 4 hours I have airway clearance that takes 30 minutes. In the morning and night I have 2 inhalers. I was so overwhelmed by it all that I started to panic. This was the first day, how could I do this for 14 days? I couldn't wait just to go to bed already. I needed a fresh start.
Day one was the hardest. Even with my family there with me I still felt so alone. As I stood in the waiting room in line to sign in all I could think about was the woman behind me coughing on my head that I wanted to slap, and the screaming children running around the room like monkeys. Their parents, ignoring them like cowards and allowing such behavior was disgusting. I wanted to block it out but I couldn't. I have always hated waiting rooms mainly because of the yelling and the sick kids I'm forced to sit with. As soon at they called my name to go back into a room I was immediately relieved. I was in good hands now and in a QUIET place. The nurses were awesome and made me feel comfortable while I waited. The anesthesiologist came in and we talked for a bit. I really liked him he was great. He talked about his daughter and how she loves fashion at such a young age. We talked with the nurses about my tape allergy and a few other things. I realized how important and helpful it is just to speak up and tell them everything. They're just people too and the more they know about you the better. After waiting a while it was time to have my procedure done. I was having a Picc-line put into my arm so I could be given IV antibiotics easily. He gave me the gas mask and I could feel the tingle. I'm always nervous they won't know when I'm totally under so I wiggle my fingers to let them know (unnecessary I know). After I went to sleep and woke up, "Oh god I'm so glad it's over" was the first thing I thought about. My arm was sore but there was a tube in it so it was normal. I waited hours before they could get me to a room because the hospital was so full but I didn't care I just wanted to sleep anyway. When I got to my room I'd be staying in I was a little sad that my window wasn't bigger. I've always loved big bright windows but I was grateful I had the room all to myself. They put me in isolation so I wouldn't get sick from the other kids but that meant I couldn't leave me room ever or go outside. Right away they started my meds. Every 8 hours I have an hour an a half of IV's and every 4 hours I have airway clearance that takes 30 minutes. In the morning and night I have 2 inhalers. I was so overwhelmed by it all that I started to panic. This was the first day, how could I do this for 14 days? I couldn't wait just to go to bed already. I needed a fresh start.
Subscribe to:
Comments (Atom)